Pediatric dermatology
February 24, 2026 · via Europe PMC
Multidisciplinary Management of Epidermolysis Bullosa.
Feinstein JA, Cacioppo C, Diab L, +7 more, Bruckner AL.
AI summary — for doctors, generated from the abstract only
This article describes one centre's multidisciplinary, patient-centred model of care for epidermolysis bullosa.
What was studied
Descriptive account of a multidisciplinary EB clinic involving dermatology, pediatrics, OT/PT, nutrition, social work and pain psychology.
Key findings
- Severe EBS, JEB and RDEB are multisystem disorders
- Collaborative team addresses cutaneous, extracutaneous and psychosocial needs
Clinical relevance
This offers a model for organising EB care, though no outcome data are presented.
Who should care
Limitations
Descriptive single-centre experience without outcome data.
EB care works best as a team effort.
This is an AI-generated summary of the published abstract, not a clinical recommendation. It may not reflect the full text or subsequent updates — verify against the original source before acting on it.
Abstract
Epidermolysis bullosa (EB) impacts the skin and other organ systems, and the management of affected patients is complex and requires coordinated care. Severe EB simplex, junctional EB, and recessive dystrophic EB are effectively multisystem disorders affecting the epithelia and other organ systems with a range of complications. This article describes our center's approach to providing a comprehensive, holistic, and patient-centered approach to care of patients with EB in our multidisciplinary EB clinic. Teams from dermatology, pediatrics, occupational and physical therapy, nutrition, social work, and pain psychology work collaboratively to manage the cutaneous, extracutaneous, and psychosocial needs of these patients.
DOI
10.1111/pde.70179
PMID
41735025
PMCID
PMC13544493
Research metadata (titles, abstracts, authors, publication dates) is sourced from Europe PMC, which aggregates content from PubMed/MEDLINE, PubMed Central, and other providers under the U.S. National Library of Medicine (NLM/NCBI). NLM does not claim copyright on abstracts; the original journal publishers or authors may hold rights to the full articles. AI-generated summaries are derived only from the abstract, never the full text, and are always labeled as AI-generated.
Want more like this?
Browse more from the feed. A free account unlocks the full feed, saving and communities.
Back to the research feed